1-7-13

Another day without pain. Barbara still had the head shakes. But they don't hurt

Sonny and Judy brought lunch today. Thanks I didn't have to cook and barbara didn't have to eat my cooking Then while they were here the therapist came. He worked with Barbara. He said it would do Barbara's neck good for a massage. He will give her a massage when he comes back on Wednesday. So I got some Ben gay out and rubbed it on Barbara's neck. She said it felt good.

After supper she went to bed and the shaking has stopped. Hope it stops for good.

1-6-13

Barbara ate a lot of food today. She even had a snack but still ate a good meal. Her head shakes continue. They are less if she is lying down. So she spent most of the day in bed.

One of the two cats that Barbara acquired has found out that she can get on the bed. In fact she likes to get on Barbara's chest and lay down. It makes Barbara happy

Barbara likes for me to read from the Bible to her. She says that her head doesn't shake while I am reading to her. So we have started reading from Genesis 1. The pastor usually challenges us to read the Bible from beginning to end as a new years resolution Barbara and I might make it, depending on her head shakes.

1-5-13

Barbara still has the head shakes. They don't hurt but does affect her eating and drinking. She still has a big appetite. After lunch barbara wanted to sit in the living room.

David and Suzzann came by to visit

After supper barbara headed back to bed. Her shaking seems to lessen when she is lying down.

Remember Sunday is coming

1-4-13

Barbara had a doctors appointment this morning. She still has the head shakes

Dr parikh has a concern with Barbara's liver count. So she sent barbara for an ultra sound. It did not show that barbara had a problem. The doctor was very concerned with the shakes so she
requested that I contact the oncologist who said that it might take up to a week before the drug really takes affect.

Then we drove home to Kansas barbara immediately went to bed
We always enjoy spending time with the kids but it is also good to get home

1-3-13

Barbara had a day of rest today. She did not have anyplace that she had to be. She had the head shakes most of the day but after supper they stopped and she got some serious sleep. Snoring included.

The doctor called today and said that her blood platelets were at 169,000. Barbara is on target to begin chemo on Monday.

The doctor is happy with the platelet count and also with the swelling of brain tissue (or lack thereof)

Barbara is just glad that God is in control. She hears about others who are suffering and she is so thankful that God has helped every step of the way this last year.

1-2-13

Got up early and was at baylor hospital at 7:15. Barbara had the head shakes. The MRI technician said he had some problems getting a good MRI but barbara finally relaxed and he was able to complete the MRI

It showed that "the affected area" has continued to decrease from July and from October. The doctor was very impressed. The doctor did not think that the head shakes were seizures. He felt they were just happening because Barbara's brain has been traumatized He did not want Barbara to use Ativan. He felt it was too quick and didn't have lasting effects. So he prescribed a new medicine that should stop the shakes but also allow Barbara use of her body

Then he said he wanted to cut about half of the steroids if possible. We have a plan to do that.

He wants to make sure that the therapist makes Barbara work out. He wants to strengthen her arms and legs.

Overall a very positive meeting with the doctor.

We drove back to OKC and will be here 2 more days as we have an appointment on Friday. Then we will go home.

I was glad that Barbara still had the head shakes so the doctor could see them. It is great how God works things out even without us. Thanks God for always taking care of barbara and me

01-01-13

Happy new years

Hope you all had a great 2012

Barbara and I pray that your 2013 is better than last year.

Barbara is still having the head shakes. No pain just shakes. It is real hard to eat or drink if your head is shaking. But barbara continues to have a great appetite and eats a lot

We left OKC today and drove to Dallas. Barbara has two appointments early in the morning. The drive down to Dallas was very hard on Barbara. She is resting tonight.